Archive for January, 2008

Family sue over ‘designer’ baby

ivf

As you may be aware I take interest over eugenics issue

are-deaf-people-parasites-to-society

http://stopeugenics.org/

now I came across this article on whats happening in Australia

ONE of Australia’s first “designer babies” born from an embryo that doctors believed did not contain a cancer gene has failed, prompting a massive lawsuit.

The boy’s heartbroken family launched the landmark legal action against a Victorian IVF clinic following the alleged diagnosis.

The couple are suing for damages to cover hospital and medical expenses for their son’s entire life.

And they’re claiming special damages for the cost of bearing and rearing another child who does not carry the mutant gene.

The distraught couple also want compensation for emotional pain and upset.

They say they would have adopted a child _ or had none at all _ if scientists had not claimed they could hand-pick embryos free of the cancer gene.

Legal specialists believe the case, if successful, could result in one the largest medical damages payouts ever recorded in Australia.

Read rest of this story

http://www.news.com.au

Can you imagine how the child feels if he ever reads this!

I seriously hope the parents win, the uk government watch with interest and end the clause 14 that we have campaigned about!

clause 14

Deaf = Abnormal … Hearing = Normal

Schoolboy deaf for nine years regains hearing after cotton bud pops out of his ear.

http://www.dailymail.co.uk
Jerome Bartens, 11, was diagnosed as deaf in his right ear when he was just two. He struggled at school, couldn’t hear the TV properly and was fed up with people having to shout at him.

But when playing pool with his friends in a church hall Jerome felt a sudden pop. He put his finger in his ear and there was the tip of a cotton wool bud which had been wedged there for almost 10 years.

His family believe Jerome was a toddler when he put the cotton bud in his ear and the centimetre-long cotton tip came off the plastic stem.

Jerome’s dad Carsten, 45, said: “It was just incredible – his hearing returned to normal in an instant. He was cured as suddenly as he became deaf. I had always suspected Jerome had stuck something in his ear when he was little and that was causing the problem. But the
doctors and hearing specialists said it was wax and he would probably
grow out of it.

“I am amazed they didn’t spot something as obvious as a cotton wool bud.”

Jerome has kept the waxy cotton bud as a souvenir of his nine years of silence on his right.

His family believe that as he grew the bud has been forced out – and finally came out nine years later.

Single dad Carsten, of Haverford west, Pembrokeshire, has now complained to his GP and hearing specialists who examined Jerome over the years.

He said: “It has held Jerome back in school and caused him problems in communicating with his friends.”

Lorry driver Carsten – who has two older daughters Takita, 16, and Tiffany, 14, – says he’s “thrilled” that Jerome’s hearing has come back.

He said: “If he was playing down the garden I would have to shout for him eight or nine times before he would respond.

“But now he has 100 per cent hearing and he’s just a normal boy again.”

Jerome is due to be examined by hearing experts later this week – and his dad is taking along the cotton wool bud as proof of his “miraclecure”.

The schoolboy said: “I can hear much better now and I think I’ll be much happier at school now my ear does not ache all the time.

“I was just playing pool in the church hall when my ear made a popping noise. It was very strange at first to be able to hear everything.

“But now I’m getting used to it – it’s great that people don’t have to shout to me or that I don’t have to turn my head all the time.”

I am writing this from a deaf persons perspective. When I tried to put a comment on the forum about it, my comments were not approved.

Newspapers print these stories but never get opinions from a deaf persons perspective. Rather they look for comments from a charity such as RNID (all hearing).

This is typical of many deaf children who struggle with incompetence from: doctors, health education authorities, some parents and bad advice from charities!

Although I am not deaf in one ear like Jerome was, people cannot understand what it’s like and reading the comments on that link; one wrote ,
‘What’s wrong with his other ear?’

Take a good look at this link and see what single-sided-deafness means – written by Ray Gillies-Jones
http://tribalvillages.org/deaf/single-sided-deafness.html

He had an ear ache.

I am amazed that doctors haven’t looked into his ears.

I have lost count how many of my deaf friends and me had our ears poked and prodded and those who wear hearing aids had their ears syringed.

His father said: “It has held Jerome back in school and caused him problems in communicating with his friends.”

He had to struggle through school, which shows how bad the education system was and is. It has nothing to do with deafness.

Not able to hear does not mean he can be held back, the problem is that he was in mainstream school. While most of the disabled groups are happy with inclusion or mainstreaming children, but it is damaging for deaf people because we know this does not work, to which Jerome have proven.

Secondly what did his dad do regarding support? Did he not get advice from a single sided deafness group?

It’s a wonder Jerome’s dad wasn’t pressurised into giving Jerome a CI or a BAHA as its getting common these days, pressurising parents that they have to have implants or be made guilty that they will be held back if they do not do so.

Shouting at him 9 or 10 times suggests the fact his father was too lazy to get him.

• Now that he has 100 percent hearing he is just a “normal” boy again.

Since when are deaf people are abnormal?

I am happy for Jerome as he knows how difficult things were and he was treated differently.

This all to common attitude, treating deaf people as abnormal, along with bad newspaper reporting, portrays being deaf as if it were a tragedy and having a difficult and struggled life!

No doubt there will be more and more stories like this where deaf = abnormal and hearing = normal.

Milo

Milo

Went to get a curry from our local curry house,my wife always phone the orders and the dog comes with me and sits patently out side shop like he always do.

The staff was a bit busy and it was taking longer than usual so I was watching tv that they have behind the counter.
Next thing I saw the their look in horror when I turned round and saw a man enter shop cuddling my dog.

“This dog was out side “

Me “yeah and?”
Him “oh is it your dog “
Me “Yeah “

At this point the staff gave me the food and said, “no no I don’t want any dogs in here”

The guy walked out still holding my dog and was about to hand him over to me

I said why don’t you put him down?

Him “He can walk?”

Me “Yeah it’s a dog he has four legs”

Can’t I use the toilet in peace?

Toilet

Looking at blogs of people who had bad jobs reminded me the time I used to be a postman few years back.
Although it’s not a bad job story.. maybe for the manager I am about to tell.

I worked with Ian who is deaf like me and speaks well ..
Working indoors sorting out mail in the evening on our 6pm to 2:18 am shift at Royal Mail where Ian proceeded to tell me that he is off to the toilet.

As he did this fire alarm went off and at the time we had no pagers to warn us the danger so I told the manager that Ian was in toilet.

The manager ran into toilet to find that Ian was in cubicle so he climbed over only to be met with his angry face shouting “get out you fucking pervert!

As Ian and the manager joined us out side waiting for the fire brigade, which turned out to be false alarm, we all burst out laughing when they told us.
The manager said, “I don’t know which was worst seeing Ian’s bottom half in the flesh or the smell of what he done

Lack Of Sleep 2

Woken up with a sharp nudge..

Me “What?”

Wife “Car alarm going off”

Me “Keys downstairs in kitchen”

Wife ” can’t you do it?”

Me “why … its not bothering me”

Lack Of Sleep

Happy Couple

Tiptoe quietly into my bedroom at 4 am after night out with the lads, making absolute sure that I don’t wake my wife and baby up.
Remembering not to fling my clothes about and avoiding creaks along the floorboards As I just about to put my foot into bed my wife sat up like Dracula sprung out of a coffin.
Seeing her arms flapping about I manage to lip-read her face from the moonlight shining through a crack in the curtains onto her face.

What I lip-read as she was pointing to her ears “ turn your fucking hearing aids off its whistling

Oooops , somehow my hearing aids managed to switch back on after I took them out and put them on a dresser !

The RNID and Sunday times have sparked disability hate crime.

ivf

The RNID and Sunday times have sparked disability hate crime.

Take a look at this link
http://www.timesonline.co.uk

Very shoddy journalism, which I think missed the very issue that we are most concerned with – see this link.

http://stopeugenics.org
We are protesting to protect an embryo from being tossed aside once it is found to have the Deaf gene.

Digg and Fark
http://digg.com http://forums.fark.com
along with so many forums and discussion board are headed with the words “string the deaf people up” “inbreeds” “ I hate deaf people” to “Fucking retards

They are referring to inaccurate reporting and an inaccurate statement from Jackie Ballard that deaf people demand deaf babies over hearing.

This is a eugenics issue NOT a designer baby issue.

I am unhappy that forum boards are awash with disability hate which is against the law in the UK.

Neither Sarah-Kate Templeton (Sunday Times Newspaper) and Jackie Ballard (RNID) will apologise for it!